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Festival Genomics

Personalizing Medicine

Covering

Genomics is altering the experience for many patients and parents – but we’re not always getting it right. What happens when there’s a failure in the system? How can we align perspectives in healthcare and readdress the balance of power? If patients are at the heart of this shouldn’t they have more power and visibility?

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09:25 AM
    • Enabling Data
    • Personalizing Medicine
    • Precision Therapies
    • Research and Development
    Who is a Scientist? How biohackers are changing the world
    Main Stage
    The rise & limitations of the independent scientist Influence of biohacking on genetic engineering Why we should support biohackers by being more accessible as a community
09:50 AM
    • Enabling Data
    • Personalizing Medicine
    • Precision Therapies
    • Research and Development
    Transformative legacy of genomics - thinking out of the box
    Main Stage
    Genomics is well known for its transformative effects on biomedical research but its contributions are much broader and more fundamental Thanks to its insistence on open data sharing genomics has laid ...
10:50 AM
02:35 PM
    • Personalizing Medicine
    Stopping cancer before it starts: What you need to know about genetic testing for cancer risk
    Main Stage
    Advances in genetic/genomic technologies and market forces are fueling the demand for genetic cancer risk assessment services across the spectrum of healthcare.  Despite recognizing the importance of ...
03:00 PM
    • Personalizing Medicine
    Molecular profiling and precision medicine
    Main Stage
    Advantages of CGP + profiling Next generation precision medicine technology Benefits to patients
04:35 PM
09:45 AM
    • Enabling Data
    • Personalizing Medicine
    • Precision Therapies
    • Research and Development
    Patients at the center of precision medicine
    Main Stage
    What are the best strategies to stay nimble yet provide scale in today’s environment to provide two way communication between patients and a data gathering center? Building a team for Data, Technology ...
10:20 AM
    • Personalizing Medicine
    • Precision Therapies
    How much power should patients hold?
    Knowledge Hub A
02:15 PM
    • Personalizing Medicine
    Inside the genetics and genomics program at RCHSD
    Main Stage
    Hear from early adopters Rady Children’s Hospitals on what it takes to establish a working genomics program in a busy hospital setting Understand current status of how genomics is benefiting children ...
02:40 PM
    • Personalizing Medicine
    “Failure in the system” how state newborn screening impact families
    Main Stage
    Real family story: living with a rare inherited disorder Impacts on a family when state newborn screening fails and when it works properly Why families decide to stand up and fight for change
03:45 PM
    • Personalizing Medicine
    Genetic testing: finding common ground between patients, physicians and payers
    Knowledge Hub B